Tuesday, March 1, 2016

Rare disease Day

Rain in the afternoon,
Rain in the evening,
Rain in the night.

Feeling poignant,
I look at the rain,
and feel that they are tears inside me.

Today is rare disease day.
My Son Andrew had Campomelic displasia.  

My thoughts for our angels who had rare disease.


The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

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